The Arthritis Foundation has been advocating for many years for the creation of a juvenile arthritis registry. A JA registry would improve the care children with arthritis receive. It would help pediatric rheumatologists make better decisions about the type of medications our children need and it could serve as an early warning system if there are unintended side effects or outcomes of JA therapies. The Arthritis Foundation testified last month at the Food and Drug Administration (FDA) recommending that such a registry be established: http://www.arthritis.org/murphy.php
Now it is your chance to let the FDA know we want them to continue their commendable work in this area and make our dream a reality - the creation of a fully funded JA registry that would help our kids! Please personalize your letter with your individual story and feel free to include some or the entire letter which can be downloaded here.
clipped from meredithboyd.blogspot.com
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